Ok, so I got busted that I had not updated the blog recently.. you see once you are not sitting in a hospital with nothing to do but work on your laptop, you tend to not have as much time to get things done.. When you are home and there is laundry, dishes, dinner, baths, bedtimes, stories, bottles, play time, homework, yard work, and a slightly incapacitated other half time seems to slip away (see that I am posting this at 10:30 at night while I am trying to wrap up some things for work) Thomas is doing well, he had a rough day today, I don’t know if it is that he did too much or if things were just catching up with him, but he went to bed early. Phil had a rough day as well, just cranky and something didn’t sit well on his tummy. Sean on the other hand was just plain pooped. It seems like no matter how hard we try, by the time Thomas gets the boys home in the afternoon and I get home from work we go nonstop and the boys still seem to never be in bed before 9:30 – 10:00… which may not seem late, but it is hard on Sean to be up so late. But anyway, we will eventually get back into a routine just in time for Thomas to go back to work and we have to start over again. I am doing well, just staying extremely busy. We took Phillip to his first Tides game Saturday night, and although he refused to sleep and was just plain exhausted, he did great. I have to say, even though I consider giving up our season tickets each year, it is just nice to have them. It is nice not to have to worry about having something to do together as a family. We started talking to Sean about what he wants to do for his birthday this year, and he wants to go to Water Country with a friend (he wants 2 friends, but we will see) Phillip is starting to try and crawl.. he can get on all fours and he can move backwards, just hasn’t quite put together that forward motion yet. We let him take a real bath without the baby tub with Sean tonight, and he loved it. He even loved floating on his back with his ears under, which was a shock because Sean still won’t do that. So all in all we are all doing well. We are counting down the days to May 9, (17 days) when we go back to the doc at UVA for the follow up. After that we will hopefully be able to start getting back to normal (or at least as close to normal as we ever were). Anyway, that is all for now, it is late and I am tired and have a ton of work to do.. Have a great night..
Well, This will be short and sweet.. We made it through an entire weekend without making a trip to the hospital.. what a great feeling. Thomas is still home and doing well. and is gaining his strength back a little at a time. There has been a steady flow of visitors and cards, all of which we are truly grateful.
Other than that there is not a whole lot to update. Things are starting to get back into a routine, and the kids are doing great. We will continue to keep everyone updated as things go along. We are looking at having to head back to UVA around May 9 for his follow appt.
Well, relatively speaking.. we have made it out of the woods of the first 48 hours post surgery, now he just has to take it easy for 7 days, and in 30 days we head back to UVA for an follow up to do a new CTA scan and see where we stand if there is any additional surgery that needs to take place. I am back at work, so this post will be short and sweet, but it is nice to be here and have something else to concentrate on. The boys seem to be doing well and are no worse for the wear after spending so much time with my parents (they seem to be a little spoiled.. but that is always a good thing) Anyway, I will try to update this again later this evening, but thank you to everyone for the calls, visits, food, everything, it definitely is an eye opener to how much you are loved when you see the outpouring at times like this.
Till later – God Bless,
Well, they discharged Thomas early Wednesday morning, and we were able to be home before the bus brought Sean home. Luckily, it was a pretty quiet night getting settled in and it was so great to have the boys with us again. Thomas has to take it very easy for the next week, and we have to return to Charlottesville in 30 days for scans to see how things are going. They only placed a stint in the right side, saying the spots on the left were too small to be able to do anything with. After that he is free for 2 more months when we have to go back again. He is sore and tired, but his spirits are great now that we are at home, and it was wondeful to get to be with the boys. Now, I have to go do some running around to get things taken care of so I can go back to work tomorrow. 🙂 I would like to once again just thank everyone for the calls, prayers and emails.. it has helped trememdously knowing we have such a great support system.
Well, the surgery went well, took about 2 hours. They had some issues controlling the bleeding afterwards which is not uncommon since his blood is so thin, but the doc said it was mostly superficial (skin) bleeding and not arterial, so that is a good thing. He is doing well and his spirits are up.. I am staying at a hotel across the street tonight since he is in PACU and I can’t stay all night. They did let me stay a little later than visiting hours so I could help him with his dinner, and spend a little time with him. His aunt and uncle came up today and were so very kind to take care of me and take me out to dinner while we were kicked out of his room for the shift change. That is going to have to be all tonight because there is a real bed calling my name and I am tired. We should be on our way home tomorrow night if all goes well, which it looks like it will. So, there may not be another update until tomorrow night when we are home, but I will update as soon as I can.
We do want to sincerely thank everyone for their prayers and offers of help and support. I must say we have some of the best friends and family around and it really makes you realize it when something like this happens…
And to close, my very favorite bible verse:
But they that wait upon the LORD shall renew their strength; they shall mount up with wings as eagles; they shall run, and not be weary; and they shall walk, and not faint. – Isaiah 40:31
The Lord does work in all of us and does not give us more than we can handle. (We may not think we can handle it, but He knows better than we do) It has been hard to remember that lately, but it is true, and he does do miracles every day.
So for now, good night and we will update soon
Love and God Bless,
OK, the doc just came in, we signed the consent form and he is going at 1:30 for the procedure, so I will probably not post another update until later tonight cause we are moving out of this room and he will be in the PACU (recovery) tonight. Thank you everyone 🙂
The nurse just stopped by.. Thomas’s levels are now good, and they just might have an opening this afternoon.. the power of prayer in action.. The RN in charge of the unit just went out to call and see what is going on, but definitely if we do not do it this afternoon, we will do it in the morning. Sooooo we could be home as soon as Wednesday night. We are sooo excited.. Of course it sucks a little bit that he now can’t eat the rest of the day, but that is a very small price to pay. As we have more information we will update everyone.